tag:blogger.com,1999:blog-577827524971348285.comments2022-12-13T07:00:54.934-05:00me (plus cancer)Kathrynhttp://www.blogger.com/profile/09554251035741751845noreply@blogger.comBlogger108125tag:blogger.com,1999:blog-577827524971348285.post-18713712960854657662016-08-27T10:52:28.542-04:002016-08-27T10:52:28.542-04:00I hope you're right about that, Caroline!I hope you're right about that, Caroline!Kathrynhttps://www.blogger.com/profile/09554251035741751845noreply@blogger.comtag:blogger.com,1999:blog-577827524971348285.post-54834515911111527282016-08-27T08:32:10.027-04:002016-08-27T08:32:10.027-04:00Take it for what it is! A stroke of good luck... w...Take it for what it is! A stroke of good luck... which should mean you are due for lots more good luck.Carolinehttps://www.blogger.com/profile/14607559482363983911noreply@blogger.comtag:blogger.com,1999:blog-577827524971348285.post-78387228709720826092016-08-26T18:52:24.512-04:002016-08-26T18:52:24.512-04:00Hi Martha, thanks for sticking around and especial...Hi Martha, thanks for sticking around and especially thanks for the prayers and good wishes. Spain was fantastic and I will try and get a few photos up soon--we literally have THOUSANDS of them so I'm a little intimidated there! Hope things are going great for you!Kathrynhttps://www.blogger.com/profile/09554251035741751845noreply@blogger.comtag:blogger.com,1999:blog-577827524971348285.post-78826453504234106332016-08-02T10:40:53.042-04:002016-08-02T10:40:53.042-04:00Hi Kathryn, Martha here, not Anonymous - I couldn&...Hi Kathryn, Martha here, not Anonymous - I couldn't figure out how to use my gmail account. Great news about your counts. Also, you get to take a vacay or blog off whenever you need to - discouragement and all those other feelings hover for a while and then crash land. Ugh. Your trip to Spain sounds wonderful and I hope you can post a photo or two. Sending prayers and best wishes for those neutrophils to rise up. MarthaAnonymousnoreply@blogger.comtag:blogger.com,1999:blog-577827524971348285.post-41779082340801717882016-08-01T16:50:01.316-04:002016-08-01T16:50:01.316-04:00Hello Kathryn I would love to chat with you. I am...Hello Kathryn I would love to chat with you. I am scheduled to start my 7 cycle of ibrance tonight but my neutrophils were low today - .9. EK Anonymousnoreply@blogger.comtag:blogger.com,1999:blog-577827524971348285.post-5726610212099443132016-07-31T18:07:04.723-04:002016-07-31T18:07:04.723-04:00Thank you, anon, I really appreciate your kind wor...Thank you, anon, I really appreciate your kind words! Hope things are going well for your wife, too, and remain that way for a good long time!Kathrynhttps://www.blogger.com/profile/09554251035741751845noreply@blogger.comtag:blogger.com,1999:blog-577827524971348285.post-29692795333878023542016-07-31T18:05:52.362-04:002016-07-31T18:05:52.362-04:00Thanks, Ipsy!Thanks, Ipsy!Kathrynhttps://www.blogger.com/profile/09554251035741751845noreply@blogger.comtag:blogger.com,1999:blog-577827524971348285.post-52216365036021378482016-07-31T18:04:38.815-04:002016-07-31T18:04:38.815-04:00I haven't been on them together, but I've ...I haven't been on them together, but I've been on each separately and my hair remained completely normal. I know I'm a few months late in replying, hope it's been going well for you!Kathrynhttps://www.blogger.com/profile/09554251035741751845noreply@blogger.comtag:blogger.com,1999:blog-577827524971348285.post-39742593101117294872016-07-04T20:19:42.771-04:002016-07-04T20:19:42.771-04:00Kathryn - I've been following your blog since ...Kathryn - I've been following your blog since January and I am thrilled to the point of tears at how well the Xeloda seems to be working for you. As a husband of somebody who is also fighting MBC, I know that there is nothing more satisfying as seeing those numbers drop sharply. I hope that your cancer has a long and extremely difficult fight against this new regimen. You most certainly deserve it.Anonymousnoreply@blogger.comtag:blogger.com,1999:blog-577827524971348285.post-8773569746741058542016-05-31T01:37:41.597-04:002016-05-31T01:37:41.597-04:00I love this post. I love enjoying the little thing...I love this post. I love enjoying the little things. I love the blue sky and rainbows and a contrast drink that doesn't make you want to hurl. congratulations. :)ispy from bconoreply@blogger.comtag:blogger.com,1999:blog-577827524971348285.post-78473856088322304652016-04-22T14:38:33.893-04:002016-04-22T14:38:33.893-04:00Hi,
My wife is on Ibrance and Femara. Femara is s...Hi, <br />My wife is on Ibrance and Femara. Femara is similar to Faslodex, but slightly difference mechanism. Ibrance says it may cause hair thinning not loss. But from my wife's experience it has not affected her hair at all for past 6 months. It is not unusual for tumor markers to go up after radiation, but then go down again on the treatment. For us, Ibrance plus Femara has worked very well. She is estrogen-positive, HER2-negative, stage 4 with bone metastases, diagnosed at stage 4. Tumor markers were down to normal levels in 4 months. But each person responds differently. I hope that helps.Anonymoushttps://www.blogger.com/profile/15193498131611779265noreply@blogger.comtag:blogger.com,1999:blog-577827524971348285.post-53097141407046400012016-04-18T20:33:36.998-04:002016-04-18T20:33:36.998-04:00Hi
I Just started ibrance and faslodex.
125mg. Do...Hi<br />I Just started ibrance and faslodex. <br />125mg. Does anyone have experience with combo. Does it cause hair loss?<br />I have BC x4. I've been a stage 1 no nodes until reccurrence 2 mos after TCH.<br />Skin mets locally. Then I was given Aromasin and Lupron after taking Arimadex and lupron.<br />Tumor makers shot up to 30 after rads and continued to climb to 60+. Pet revealed axilla nodes opposite side and pectoral region total 4. I never had nodes envolvement. Terribly saden. But grateful also.Anonymousnoreply@blogger.comtag:blogger.com,1999:blog-577827524971348285.post-88288232441670488792016-04-17T10:07:32.689-04:002016-04-17T10:07:32.689-04:00Thanks, Caroline! I think Yippee says it all--and...Thanks, Caroline! I think Yippee says it all--and it works for me as I'm still wandering around yipeeing, myself!Kathrynhttps://www.blogger.com/profile/09554251035741751845noreply@blogger.comtag:blogger.com,1999:blog-577827524971348285.post-22033539389005632012016-04-14T07:18:51.980-04:002016-04-14T07:18:51.980-04:00Yippee!
Else can I say?Yippee! <br />Else can I say?Carolinehttps://www.blogger.com/profile/14607559482363983911noreply@blogger.comtag:blogger.com,1999:blog-577827524971348285.post-76862604903451926992016-04-13T21:03:49.569-04:002016-04-13T21:03:49.569-04:00Thanks for commenting, Anon! Hope things continue...Thanks for commenting, Anon! Hope things continue to go great for your wife! I have to agree that it is a pretty good time to have cancer (better not to ever have it, of course, but better now than previously), it seems like there are some amaizing things in the works. Please keep up the good work in your research, what a wonderful thing to be able to work on.Kathrynhttps://www.blogger.com/profile/09554251035741751845noreply@blogger.comtag:blogger.com,1999:blog-577827524971348285.post-49443379430682089872016-04-13T14:26:53.842-04:002016-04-13T14:26:53.842-04:00I just want to say that I appreciate your blog ver...I just want to say that I appreciate your blog very much. My wife is in a similar situation. She was diagnosed with metastatic ER+ HER2- breast cancer about 6 months ago, at about your age, and we have a son less than 2 years old. The mets were only in her bones, fortunately. She was given Ibrance and letrozole as first line, following ovarian removal, and also monthly Xgeva injections. It is working so far- she is in partial remission. We have a fantastic medical oncologist at a great cancer center. Your blog helps me better understand what people in similar situations are going through, as well as what we may expect in the future. Thank you for putting your life experiences out there. I happen to also be a cancer researcher, so doing my job will hopefully help my wife and others in the future. From a medical and scientific perspective, the future of cancer treatment is very promising (dare I say if you're going to have cancer, this is a good time to have it, compared to even 10 years ago). But we still have a long way to go before anyone can be said "cured". Keep up the fight.Anonymoushttps://www.blogger.com/profile/15193498131611779265noreply@blogger.comtag:blogger.com,1999:blog-577827524971348285.post-35413404716652769482016-04-03T10:45:09.168-04:002016-04-03T10:45:09.168-04:00Thanks, Martha, hope you're doing well!Thanks, Martha, hope you're doing well!Kathrynhttps://www.blogger.com/profile/09554251035741751845noreply@blogger.comtag:blogger.com,1999:blog-577827524971348285.post-1924702982255727632016-03-27T07:16:48.937-04:002016-03-27T07:16:48.937-04:00Hi Kathryn,
You're in my thoughts and I hope t...Hi Kathryn,<br />You're in my thoughts and I hope that Xeloda is continuing to work. Happy Easter, happy spring, and happy garden planning! Hugs, MarthaMWrighthttps://www.blogger.com/profile/04606405402330116195noreply@blogger.comtag:blogger.com,1999:blog-577827524971348285.post-68743088740464367202016-02-17T08:32:52.003-05:002016-02-17T08:32:52.003-05:00Good luck with all of it, Sue!Good luck with all of it, Sue!Kathrynhttps://www.blogger.com/profile/09554251035741751845noreply@blogger.comtag:blogger.com,1999:blog-577827524971348285.post-58635477038996119092016-02-17T08:32:22.204-05:002016-02-17T08:32:22.204-05:00Thank you, Pat!Thank you, Pat!Kathrynhttps://www.blogger.com/profile/09554251035741751845noreply@blogger.comtag:blogger.com,1999:blog-577827524971348285.post-2511797807513684292016-02-17T08:31:24.507-05:002016-02-17T08:31:24.507-05:00Thank you, Mad at Comp, I'm glad you like it! ...Thank you, Mad at Comp, I'm glad you like it! Hope Ibrance is going wonderfully for you, my fingers are crossed for both of us, too!Kathrynhttps://www.blogger.com/profile/09554251035741751845noreply@blogger.comtag:blogger.com,1999:blog-577827524971348285.post-13974264129034867502016-01-31T02:04:56.250-05:002016-01-31T02:04:56.250-05:00your blog is wonderful. Thank you for sharing. It ...your blog is wonderful. Thank you for sharing. It has just the kind of info I was hoping to find. I just started Ibrance yesterday (posted about this to one of your summer posts). I've got my fingers crossed for both of us ;)Mad at Comp trying to save a buck at my expensehttps://www.blogger.com/profile/14501279934341955129noreply@blogger.comtag:blogger.com,1999:blog-577827524971348285.post-35161359938850566152016-01-31T01:05:46.826-05:002016-01-31T01:05:46.826-05:00Hi, newly dx (stage 4 right off rip). Two tumors l...Hi, newly dx (stage 4 right off rip). Two tumors left breast/lymph system/bones/maybe lungs. On Letrozole for a month and had marked decrease in size and rigidity of breast tumors. was very happy. No bad side effects. then started Ibrance yesterday at 4pm. By midnight, tumors were swollen and hard for first time in 3 weeks and lymph nodes swollen. Thus the dive into the internet to see if this has happened to anyone else. I vaguely remember doctor the dr saying this would happen for the first 2 months and it was a sign that it is working. I sure hope so. It is uncomfortable and scary. I'll keep my fingers crossed with you. hugs. Sue<br /><br />Oh yea, I had to take my contact lens out. Too dry by the next morning after first dose to leave them in. Anonymousnoreply@blogger.comtag:blogger.com,1999:blog-577827524971348285.post-56986764783304466042016-01-09T12:43:12.028-05:002016-01-09T12:43:12.028-05:00Thanks, Martha! As it happens, I studied art hist...Thanks, Martha! As it happens, I studied art history and then architecture, so we have that almost in common :) Thank you for the thoughts and prayers, peace and thumbs up to you, too!Kathrynhttps://www.blogger.com/profile/09554251035741751845noreply@blogger.comtag:blogger.com,1999:blog-577827524971348285.post-84625410594188679682016-01-09T11:22:22.574-05:002016-01-09T11:22:22.574-05:00Wow. What great news at the beginning of this new ...Wow. What great news at the beginning of this new year! No worries about not replying to a post - whatever taking good care of yourself requires is best. Did I ever tell you how much I enjoy the images that accompany your posts? I studied art and landscape architecture (and now am painting for my own enjoyment) - so I always look forward to your choices. You continue to be in my thoughts - prayers as well. Peace and thumbs up! MWrighthttps://www.blogger.com/profile/04606405402330116195noreply@blogger.com